motherhood: defeated.

Today, I feel defeated. Today, I hid in a bathroom and cried. Today, I gave up.

PJ had her monthly check-in with her psychiatrist. We turned in her teachers report to her. Although we didn’t read the report, we know what it said based on the meeting we had with her and school psychologist late last month.

PJ has an exceptionally short attention span. PJ does not sit still. PJ likes to scream. PJ does not answer to her name. PJ doesn’t get tired. PJ is overly affectionate. 

These things we know. These are things we’ve known her whole life. When we started trying to get help for her last year these things were still issues. These were issues we had with her at daycare. And we were working with a speech therapist at the time. But we haven’t seen her since December 2016.

We’ve been having trouble finding therapists who are willing to work with PJ because of the language barrier. Last year she barely said more than 10 words in Spanish, however since she started at her new school her Spanish has flourished. But we still want a therapist that UNDERSTANDS English in case they need it to reach her when she’s stubborn or hyper. (Not charging us USD$300.00 a month and asking us to pay their vacation days whether or not those are days they would normally see PJ would be great too).

After the psychiatrist read the report, she put it down and very frankly said, “Well, after reading this my professional opinion is you should medicate her. Start her off on a very small dose and see where we go from there. Have you thought about that?” And while my response may have taken .04 seconds to come out of my mouth, in my head a whole week passed. Yes, my husband and I had talked about what would we do should anyone suggest medicating her. We always said no but at that very moment PJ was throwing the mother of all tantrums because she wanted to play with some party favor lost at the bottom of the diaper bag, and I hesitated because in that moment I would’ve done ANYTHING to get her to calm down for thirty seconds.

“No, we don’t feel comfortable giving her medication. She’s only three.”

And her very short response was, “You’re here for a reason and this is my professional opinion. It’s up to you whether you take it or leave it.” At that point PJ was sprawled out on the floor kicking and screaming. I could feel my blood start to overheat and I wanted out of there as soon as possible.

While leaving the doctors office I couldn’t help but think to myself, “Are we really at that point? Is she really THAT hyper and uncontrollable? Am I really that weak that I thought, for a moment, that we definitely should medicate her? Could NOT giving her the medication hurt her? WHAT DO I DO?

I couldn’t help but look down at my tiny person and want to cry. I love her so much and want to make the best decision for her but don’t know where to begin. I plan on getting a second opinion soon. I reached out to the occupational therapist who evaluated her back in February to see if she could give me some direction in finding new therapists. I’m meeting with her pediatrician next week to see what she says as well.

We have another check up in six weeks to let her know what we’ve decided on…we’ll see what happens from here to then. I just hope I can make an educated decision for my daughter.

If any of you have had any experience in dealing with Risperidone please feel free to share it with me. 

Our new adventure with Autism.

I’m not sure if I’ve mentioned it before but PJ has a speech delay. She’s always been hesitant to speak or communicate in ways other than grunting/screeching and pointing.

I started noticing the delay when she was about 18 months old and still hadn’t said,”Mama” on more than one occasion. Whenever I tried to share my concerns everyone brushed them off and said things like, “Kids develop at different speeds/So and so didn’t start talking until they were 5/You’re just being paranoid she’s fine.” But deep in the pit of my stomach I knew that things weren’t fine.

When PJ started school last year I always asked the teachers how she was doing and I was constantly being told that she didn’t really interact with the other kids or that she would immerse herself in her own activities and not participate. They thought she might have an ear problem so we started taking her to appointments. We had a few meetings with the school’s psychologist but she never suggested anything more than what we were already doing.

After months of appointments of hearing tests and figuring out that her hearing was in fact fine we were directed to see a pediatric neurologist. She prescribed an EEG which took us MONTHS to finally get because PJ kept getting sick whenever we had it scheduled–after 5 months we finally got it done and everything was normal. The neurologist also suggested we start seeing a speech therapist to see what we can do. And so, PJ started seeing a speech therapist twice a week for 50 minute sessions.

After only two months of therapy PJ was able to say more than one syllable words. She started asking us for things as opposed to grabbing us by the hand and taking us to whatever she wanted. She was able to put tiny phrases together like “Momma come!” or my favorite at the time “Shake, rattle, roll!”

Don’t get me wrong, PJ knew things. She knew her alphabet. She knew her numbers. She knew the difference between her vowels and her consonants. PJ knew her animals and what noises they made. Everyone, including the doctors and teachers, said PJ was brilliant and knew more than most two and a half year olds but she just didn’t know what to DO with that information.

When we took PJ to Miami, coincidentally right after she turned three, she had an intense mental growth spurt. She was able to answer “yes” or “no” to our questions and she was able to more or less communicate with her cousins. She would talk to us about things she saw or specifically ask us for things like “Mom, we go to cousin house?” I must’ve cried so much on our trip just seeing this new light in her eyes, the excitement of being able to communicate. But she still had her little quirks of isolating herself, not answering to her name whenever she was too immersed in something, or even organizing toys by size or color.

Fast forward to last week when we had a meeting with a new pediatric neurologist. This time we were (unknowingly) meeting with the head of the department at our hospital. She spent almost two hours with us interviewing us and observing PJ play in the corner of the office. For the first time someone asked us, “Have you ever thought that your daughter could be on the spectrum?” I wanted to break down crying because finally someone wasn’t ignoring it. I had spent months trying to get someone to acknowledge that it was a possibility but every therapist and doctor said we hadn’t crossed that bridge yet.

To sum up the meeting she recommended we start taking PJ to meet with an occupational therapist as well as her speech therapy. She was calm and patient, she explained that PJ obviously isn’t on the more extreme side of the spectrum (whatever that means) but that she just had things she needed help with. She assured us that PJ would lead a normal life; which kinda made me roll my eyes because obviously this isn’t a death sentence but I guess not every parent sees it that way.

However I will say that this couldn’t have come at a more stressful time. Trying to set up an appointment with a therapist in the middle of Uruguayan summer is next to impossible since everyone is on vacation. We still don’t know PJs school schedule for the upcoming year so we can’t really schedule a set therapy schedule until the end of February. And then of course we have the new baby coming. We’re going to do everything in our power to get PJ the help she needs but it’s not going to be, for lack of a better word, easy.

Right now I just ask for positive thoughts and prayers as we navigate through this new parenting journey. That God place us where he wants us, with therapists that will help her, with teachers that will be understanding, and as always continue to bless us with people that love and care for our family.